الفهرس 
IntroductionOnly 14 pages are availabe for public view
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Abstract
Systemic Lupus Erythematosus affects all aspects of a person’s life and may require ongoing treatment and lifestyle changes for the person to continue functioning at a desirable level. Medical treatment and learning instruction are important ways to intervene and stop the occurring of such problems, which interferes with the lives or even survival of patients suffering from SLE. The aim of this study: The study aimed to develop and implement instructional learning package for patients with Systemic Lupus Erythematosus, as well as evaluating their outcomes at the study setting. Material and Methods: Quasi-experimental research design was utilized to conduct this study. This study was conducted in Urology and Nephrology Center –Mansoura University. The purposive sample was selected in this study from number of adult patients with Systemic Lupus Erythematosus from both genders during a period of six months. Six tools were used in this study for data collection as follows: Tool I: Patient’s Assessment Structure Interview(Demographic characteristics- Patient Medical History). Tool II: Lupus Knowledge Questionnaire- Tool III: (Lupus Patient Reported Outcome Tool) LupusPRO- Tool IV: Numeric Pain Rating Scale 0-10. Tool V: Fatigue Severity Score (FSS). Tool VI: Patient’s Perception to Systemic Lupus Erythematosus Questionnaire. Results: The result of the study can be summarized in the following: Most of studied patients (95.8%) were female, two fifth of the participants age (40%) ranged from 20 to 30 years. Only (10.5%) of studied patients had a good score level related lupus pre implement of learning package while, this percent improved to (97.9%) at post implementation of learning package. Almost of them (75.0%) were married and most of the patients were secondary and university educated (46.9% and 46.2%) respectively. There was highly statistically significant difference (p< 0.001) in the post learning package phase compared to pre learning package phase regarding lupus reported outcome score. There were highly statistically significant differences between pre and post learning package implementation regarding pain assessment. Fatigue severity mean was 45.6 before implantation of learning package compared to 34.6 post implantation of learning package. Brief illness perception mean was 42.3 before implantation of learning package compared to 46.8 post implantation of learning package Conclusion and recommendations: The learning Instructions package had a significant effect on the improvement of patient’s knowledge, health status, pain, fatigue and illness perception post implementation of learning package. According to the patients request (they wish to establish a special hospital for treatment of SLE with all the specialties they need.