الفهرس 
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Abstract
Aim of the study:
The study aimed to evaluate the effect of health education for parent with rinetoblastoma children to prevent home accident through:
1. Assessing the parent knowledge and practice toward prevention of home accident for their children with retinoblastoma.
2. Assess health need and health problem of the children with retinoblastoma.
3. Assessing the home safety environment to provide safety and prevention for children with retinoblastoma.
4. Designing intervention program for the parent to improve their knowledge and healthy practices regarding home accident among children with retinoblastoma.
5. Evaluating the effect of the knowledge and practices of the parent to prevent home accident among their children with retinoblastoma.
Technical design: The technical design includes, study design, research setting, subjects and tools were used for data collection.
Study Design:
A quasi experimental design was used to achieve the aim of the study.
Research setting:
The study was conducted in two setting, children cancer hospital 57357 outpatient which considering as the main hospital all over Egypt provide care and cure for children with cancer by free of charge, And home visit for the parent to observe environmental safety measure in home through standardized checklist.
Subjects of the Study:-
A purposeful samples of parent with the children suffering from retinoblastoma was used from the pre mentioned setting, with a total number of around 10% of total number of parent who attended the holding area with their child were followed up till December2017 for examination or take treatment equal number arroun1630 but available during study 100 parent and take the agreement from statistical department in the setting.
Criteria of Sample selection:
The inclusion criteria of the study involved:
1. Children whose ages are from less than year until 5 year.
2. Children who have their parents with them in a hospital.
3. Children who diagnosed early diagnosis within 3month.
4. Children with Retinoblastoma unilateral or bilateral.
5. The Children coming from Greater Cairo and its suburbs
Tools of Data Collection:
Three tools were used for data collection.
The first tool: An Interview Questionnaire
This tool was written simple Arabic to assess parents and their children with retinoblastoma, it included the following parts:
- Part I: It is concerned with demographic data of the children with retinoblastoma and the parents that included, sex, age, residential area, and child ordinal. educational level, and occupation, number of family, number of children, monthly income from question from 1 to 12.
Part II: Concerned with past medical history for family have children with retinoblastoma questions from 13to16, and present medical history for children with retinoblastoma, questions from 17to21.accident history questions from22to25.
Part III: it was concerned with health problems for children with retinoblastoma questions from26to33.
Part IV: Concerned with health needs for children with retinoblastoma that included into four items modified from (Hockenbery and Benner, 2012), physiological, psychology Safety needs and social needs. questions from 17to21
Part V: parent’s knowledge regarding children with retinoblastoma:
It was concerned with parent’s knowledge regarding children with retinoblastoma. Parents’ responses to knowledge questionnaire were checked with model answered.question from 35 to 46.
Part VI: parents’ knowledge regarding preventive home accident:
It was concerned with parent’s knowledge regarding preventive home accident among their children with retinoblastoma. Question from 47 to 60.
Part VII: Assess parent practice as reported about preventive home accident among their children with retinoblastoma. The practices related to prevention of home accident among children with retinoblastoma consisted of 41 items.
Second tool: Assessment of environmental safety measure in home through standardized observation checklist of home environment to preventive home accident (National Safe Kid, 2015).
Third Tool:
Medical Record analysis in order to identify (degree of disease, health problem etc…..)
Construction of health educational program:
Actual needs assessment was done and accordingly the program was designed after reviewing the related literature and implemented. In addition to the program intervention prevention of home accident guiding booklet was designed by the researcher; it was designed in an Arabic language. It serves as a referral guidelines for the parents and their children with retinoblastoma. The guiding booklet was evaluated for its content validity and clarity by a panel of experts’ professions in field of the study including the supervisors of this work. In the light of their comments, the necessary modifications were carried out and the final form of the guiding booklet was administered. The program was designed to improve the quality of life for children with retinoblastoma.
The finding of the present study could be summarized as follows:
The present study shows that above half of the studied mother’s age ranged between 20-30 years. And shows that around half of the studied father’s age ranged between 30-40 years the present study found that the mean age of child with retinoblastoma was 1.91 1.025years. Meanwhile, more than half of the parents had consanguinity, the majority of parental consanguinity were first degree.
The most of parents had unsatisfactory knowledge about retinoblastoma. Which improved to satisfactory knowledge for around the majority of parents respectively post program implementation. The total knowledge of parents improved post program implementation with highly statistical significant relation between pre and post program implementation X 2 146.27 and p value > 0.0001.
The total knowledge about prevention of home accident among children with retinoblastoma improved post program implementation with highly statistical significant relation between pre and post program implementation the majority of parents respectively post program implementation; while post program implementation, the educational program produced improvement in parents’ knowledge related to first aid with clear highly statistical significant relationt.
Also showed improvement in parents’ practices related to prevention of home accident among their children with retinoblastoma with a highly statistically significant difference; that there was a noticed improvement of parents’ total practices through program implementation from inadequate practices to adequate practices for post program with highly statistical significant relation. Also, there is improvement of safe home environmental measure post education program around two third were safe home.
• The finding of the present study, suggested the following recommendations:
1. Implement health education sessions through mother classes programs regarding prevention of home accident among child with retinoblastoma including premarital counseling and premarital investigations towards the prevention of inherited retinoblastoma.
2. Booklets, and simplified teaching materials should be available for parents to guide them with essential information regarding care of children with retinoblastoma.
3. Emphasize the importance of designing periodic training programs for parents according to their actual needs in area of prevention of home accident among their children with retinoblastoma.
4. First aid training should be provided to parents as an essential need in emergency of home accidents.
5. Further researches about care of children with retinoblastoma