الفهرس 
REVIEW OF LITERATUREOnly 14 pages are availabe for public view
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Abstract
C
hildren with cerebral palsyhave problems in daily activities namely their feeding, drinking, dressing, transferring, elimination skill and grooming (personal hygiene). Mothers and their children are in need for continuous education and support to perform activity of daily living.
The study aim was to translate into Arabic and validate the CPCHILD. To use the Arabic version of CPCHILD in assessing the caregivers’ perceptions of the health status, comfort, wellbeing, functional abilities, and quality of life of children with cerebral palsy.
The Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILD) Questionnaire measures the care giver’s perspective about the child’s health status, functional abilities, and ease of caregiving. Permission for its use was obtained by the copy right holders with permission to translate into Arabic. Then validity and reliability will be done.
Seventy children with cerebral palsy were enrolled, age 2 to 12 years (mean +SD 4.90±2.96 years). The age between 2-6 years was 48(68.6%) of them, 22(31.4%) were above 6 years to 12years. As regards sex distribution, there was male predominance with 38 males with percentage 54.3% and 32 females with percentage 45.7%. The associated comorbidities, 45(92.9%) delayed language development, 49(70%) Intellectual disability, 48(68.9%) Feeding impairments, 42 (60 %) Growth failure, 32 (45.7%) Epilepsy, 11 (15.7%) Skeletal deformities, 5 (7.1 %) Hearing problems, 1 (1.4 %) Visual problems, 3(4.3%) patients had single co-morbidity, 8(11.4%) had two co-morbidities and 59(84.3%) had multiple co-morbidities.
All the caregivers were the mothers, their age mean+SD 34.84±7.33 (20-50) years, 4 (5.7%) were divorced. The family size mean+SD 5.26±1.95. Their educational level, 41 (58.6%) obtained high school or below, 9 (12.9%) high school diploma, 20 (28.6%) college or university degree, non were employed.
The mean and range for Caregiver Priorities & Child Health Index of Life with Disabilities total score was 26.45 (0-58.3), Personal care / activities of daily living domain6.59(0-50), Positioning domain, Transferring & Mobility domain7.47(0-81), Comfort & emotions domain 54.83 (0-92), Communication & Social Interaction domain18.01(0-81), Health domain58.43(0-100), Overall Quality of Life domain40(0-100), (n=70).
Multivariate analysis revealed that significant independent predictors of CPCHILD (quality of life)were age of children, level of motor function, number of comorbidities, and age (years) of parents.
CONCLUSION
T
he foregoing results of this cross-sectional study highlights the actual needs of CP children and from their parents’ perspectives. They showed the need to improve the muscle power and function to make their children able to be self-dependent and can achieve their daily needs.
Therefore, CPCHILD is a multi dimensional patient centered assessment tool. It is an appropriate tool for the determination of the fundamental problems of children to select the most appropriate therapy approaches for these problems and to assess therapy. The assessment should provide information on the primary, secondary, and tertiary problems, functional capacity of the children, and the expectations of the children and families.
RECOMMENDATIONS
Therefore, it could be recommended to:
T
he CPCHILD can be used to assess the priorities of children with CP and their family. Its results can be used to tailor therapy according to the family priorities.
The CPCHILD can be used to perform awareness programto have a better self-care competency among their children, to be more independent in their daily living activities.