الفهرس | Only 14 pages are availabe for public view |
Abstract Multiple sclerosis is a chronic, inflammatory demyelinating disease of the central nervous system that represents one of the major causes of neurological disability, impairing quality of life during patients’ productive life. Aim of the study was to assess the quality of life needs for patients with multiple sclerosis. Design: A descriptive exploratory study. Settings: Multiple Sclerosis Unit of Qasr Al-Aini at Cairo University Hospitals. Study subjects: A purposive sample of 70 adult patients from both genders admitted to multiple sclerosis unit. Data collection tools: Tool I. Interview Questionnaire Sheet. Tool II. Multiple Sclerosis Quality of Life -54 Instrument. Results: Regarding patients’ knowledge, nearly three quarters of studied patients had poor total knowledge regarding multiple sclerosis, while more than one quarter of them had average total knowledge. Regarding patients’ quality of life, nearly three quarters of studied patients had poor total quality of life regarding multiple sclerosis whenever, more than one quarters of them had average total quality of life regarding multiple sclerosis. There is a highly statistically significant relation between demographic characteristics and patients’ total knowledge. There was statistically significant relation between patients’ total knowledge and their total quality of life related to multiple sclerosis Conclusion: Regarding patients’ knowledge, nearly three quarters of studied patients had poor total knowledge regarding multiple sclerosis. Regarding patients’ quality of life, nearly three quarters of studied patients had poor total quality of life regarding multiple sclerosis. Recommendations: Invesigators should continuously create educational programs for multiple sclerosis patients’ and their families about the disease, management, complication & treatment. Ensuring of adequate assessment of nurses during their care and providing teaching with motivation and feedback for patients with multiple sclerosis. |