الفهرس 
Family caregivers knowledge and practices among children with phenylketonuria :A suggests nursing care protocol
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Abstract
PKU is an inherited disorder in which the body lacks the enzyme needed to convert Phe to tyrosine. Excess Phe accumulates in the blood and tissues can damage the brain and nervous system if left untreated (Didycz & Bik-Multanowski, 2018). PKU disease is the most common chronic genetic disorder which needs family caregivers’ daily effort to deal with the child’s disabilities, maintain a special rehabilitation and diet program, monitoring blood Phe level and child{u2019}s growth; and coping with such needs may be difficult. Maintaining long time nutrition regimens and applying complementary diets are the main therapeutic tasks in treating children with PKU which require perfect collaboration of the family caregivers (Regnault et al., 2015)