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العنوان
Burden, Depression and Quality-of-Life Among Family Caregivers of Newly Diagnosed Patients with Incurable Cancer /
المؤلف
El-Sherif, Rofida Ahmed Mamdouh.
هيئة الاعداد
باحث / رفيدة أحمد ممدوح الشريف
rofidaelsherif@gmail.com
مشرف / أحمد حسن شعبان
مشرف / سامي عبد الرازق الصيرفى
مشرف / فاطمة أحمد عباس
الموضوع
Cancer.
تاريخ النشر
2023.
عدد الصفحات
75 p. :
اللغة
الإنجليزية
الدرجة
ماجستير
التخصص
علم الأورام
الناشر
تاريخ الإجازة
17/7/2023
مكان الإجازة
جامعة بني سويف - كلية الطب - الاورام
الفهرس
Only 14 pages are availabe for public view

from 81

from 81

Abstract

English Summary
A cancer diagnosis changes the life of patient and their family members as it is a chronic disease which requires long-term treatment and care.Cancer patientsespecially during the terminal phase of the illnessneed special attentiontopsychological and physical issues. A family caregivermay be a spouse, adult child, relative, partner or friend who has a personal relationship with, and give a broad range of unpaid assistance (Karabekiroğlu et al., 2018).
Cancer-related therapy is now administered in outpatient settings which results in increased reliance on caregivers to help with daily activities (ADL) e.g., dressing, bathing,meal preparation, and regarding tasks such as carriage to medical appointments and managing side effects of cancer treatment. Cancer patients may have decreased physiologic reserve and require increased aid from FCs during periods of stress e.g., during the sideeffects of cancer treatment which put considerable tension on FCs(B. A. Given et al., 2001).
Because of all atter causes of CB, this study aimed to determine the prevalence of CB, and depression among FCs of patients with newly diagnosed incurable cancer and to examine their relationship to family caregivers’ quality of life. 95 adult family caregivers of adult patients with newly diagnosed incurable solid tumorshad been studied in this study as targeted CB. The study extended from October 2022 to April 2023 at the outpatient clinic and inpatient ward of the Clinical Oncology Department, Faculty of Medicine, Beni-Suef University.
For doing this study ethical approval wassought from the Research Ethics Committee of the Faculty of Medicine, Beni-Suef University, and all participants in this study signed/fingerprintedand informed consent.
Results of this study showed that the mean (SD) ZBI-22 score was 18.2 (12) and the median (IQR) was 17 (11-23.8). One third (32, 33.7%) of caregivers had significant burden and scored >20 total ZBI score.In this study, a variable that was associated with significant CB was helping with late-loss ADLs.
This study also assessed depression among FCs and the results indicated that almost one-third of them had moderate/severe depressive symptoms (≥10 total PHQ-9 scores).
Another questionnairethat was included in this study is the SF 12 Questionnaire. The median score was found to be ≥ 75 in response to only four out of the 12 questions.These four are Bodily pain, Physical function, social function, and vitality of FCs.
Caregiver burden was significantly associated with higher depressive symptoms score and worse quality of life one.
Results concluded by this study showed that FCs of patients with newly diagnosed incurable cancer have significant CB in our region and screening for CB is mandated for FCs who assist their relatives with ADLs, especially the late-loss ones.Early detection and assessment are needed to decrease impact of burden on different aspects of their long journey.