الفهرس 
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Abstract
Ewing Sarcoma is a highly aggressive bone and soft-tissue malignant cancer. Worldwide, is considered the second most common bone and soft tissue cancer in children and adolescents. It occurs without particular clinical signs and can impact several different areas (Amer et al., 2022). It is classified as a tumor with unfavorable prognosis and a poor overall survival, especially in metastatic or relapsed disease (Daher, et al., 2023) with 20–25% of patients presenting metastases at the time of diagnosis. Cure rates for metastatic and relapsed disease remain poor. So, more than 90 % of patients die from disseminated disease. EWS requires a very intensive treatment regimen including multiple chemotherapies as well as surgery or radiation for local control (Gillani et al., 2022) and (Zöllner et al., 2021).
Community health nurse play an instrumental role in assessment techniques that lead to prompt evaluation and intervention of such diseases. Community health nurse is a vital in the education and reinforcement of supportive care needs for patients with Ewing Sarcoma and their caregivers (Gabbert, 2020).
Aim of the study:
- This study aimed to assess caregiver awareness regarding health care offered to their children with Ewing Sarcoma through:
1. Assessing care givers knowledge regarding Ewing Sarcoma.
2. Assessing care givers’ reported practices toward children with Ewing Sarcoma.
3. Assessing care giver attitude toward children with Ewing Sarcoma.
4. Assessing child with Ewing Sarcoma health needs.
Research question:-
1. Is there a relation between caregivers’ socio-demographic characteristics and their knowledge regarding their children with Ewing Sarcoma s?
2. Is there a relation between caregivers’ knowledge and their practices toward their children with Ewing Sarcoma?
3. Is there a relation between caregivers’ reported practices and their children’s health needs?
Research Design:
A descriptive analytical design was utilized in this study.
Research Setting:
The study was conducted at outpatient clinics for bone tumors in Elbuhaira Cancer Center, Egypt. Elbehaira Cancer Center serves all citizens for all ages that live in Elbehaira governorate and it considered the biggest center where patients with cancer were treated.
Sample type and size:
Convenience sample composed of (355) caregivers caring for their children with Ewing Sarcoma .
Inclusion criteria was: All children with bone tumors and their ages range from 10 to 18 years.
Tools for data collection:
Two tools were used for data collection:
The first tool: Structured Interview Questionnaire Sheet.
Developed by researcher based on scientific review of literature and designed on Arabic format in suitable language to suit participant’s level of understanding to assess the following parts:
Part I:
A- Socio-demographic characteristics of caregivers.
B- Demographic characteristics of children with Ewing Sarcoma.
C- Medical history of the child with Ewing Sarcoma.
Part II: Caregivers’ knowledge regarding Ewing Sarcoma.
Part III: Caregivers’ reported practice regarding Ewing Sarcoma.
Part 4: Attitude of caregiver for children with Ewing Sarcoma.
The second tool: Observational checklist for health status of child with Ewing Sarcoma.
The results of the study could be summarized as follows:
Slightly less than two thirds of the study sample had unsatisfactory total knowledge regarding Ewing Sarcoma disease.
More than half of the study sample had unsatisfactory total reported practice regarding Ewing Sarcoma disease and also have negative attitude for children with Ewing Sarcoma.
The majority of the children with Ewing Sarcoma had high health needs.
In conclusion: based on answers for research questions. The study concluded that, there were a highly statistical significant relation between caregivers’ total knowledge and their educational level, monthly income, age, and relation with child. There was a highly statistical significant relation between caregivers’ total knowledge and their total reported practice, and between caregivers’ total reported practice and their total children health needs.